Food Storage & Other Adventures in Motherhood

Experience about Research and Infant Reflux

by heather

Yesterday I attended a poster presentation event where multiple professors from the College of Nursing shared their research findings. One of the studies (which is still in the works) was on infants with acid reflux (GERD), the mental health of their mothers and the effects of infant massage to ease their discomfort. The study found that mothers of infants with reflux are more prone to postpartum depression and less likely to effectively bond with infants, which causes the mothers a great deal of distress. After she finished her summary I asked how she thought a lack of standard of care in medical treatment effected the outcomes of these babies. The other students started asking me questions. I explained that my daughter with reflux had done well on a trial of Nexium, but the insurance company who not pay for it unless she failed at least five other medications.

One of the other students said “That’s inhumane!”

“You know what, actually it is.”

It’s nice to have some unexpected validation for a past horrific experience. If you are a mother of an infant with reflux and you are struggling, hang in there! It gets better. And what you are going through is not a natural experience. It’s more like super mom training.

6 Responses to “Experience about Research and Infant Reflux”

  1. Angela says:

    Its my first time visiting your blog and I just wanted to say I really like it. This post really hit home for me. Both my kids had reflux as babies and I had such a terrible time when they were newborns. I am sure it contributed to my PPD. It is so hard emotionally, financially, physically to have a baby crying in pain day and night (not to mention going through all those expensive medications). I would see these happy babies and wonder what I had done wrong, why I couldn’t keep my baby happy or even take my baby anywhere.

    Anyways, I fully support any measures to make it easier on moms and their babies that struggle with this! So keep up the good work!

  2. tori says:

    hi my son has horrible reflux and the dr thinks solids will help but it makes him throw up. which solids worked best for your son?

    • heather says:

      I found that attempting solids made things worse and she had to wait much longer to attempt solids. I kept her on breast milk, oatmeal and level 2 foods for a LONG time. My pediatrician (who is a GI specialist) said that having reflux means that they usually also have a far more sensitive gag reflex. Good luck!

  3. Jenn says:

    “And what you are going through is not a natural experience. It’s more like super mom training.”
    Thank you Heather for your above comment! I got tears when I read it! I actually read your other posting about you and your child’s acid reflux experience a week ago. I am going thru this with my son as well. I have never heard of this before but now that I am researching it, it is very common issue that doesn’t have an immediate cure. His demeanor has been perfect since we switched to Nutramigen. He is finally content when awake, although he is still throwing up. I am going to create a website with my journey when we get this resolved. I had 2 previous missed miscarriages and found out when the dr listened for the heartbeat and there was none. I had a high risk pregnancy and was terrified with every dr appt. He is my miracle and every time I look at him I know I am blessed as I have waited for him for 45 years. Because of my age, I have a lot more patience now which I am very thankful for. Having a child with acid reflux is draining. I was breastfeeding initially and was painfully engorged after 10 min of feeding because he was wanting to eat every 20 minutes. We switched to Nutramigen and I continued to pump in case switching didn’t work. I was exhausted because I was trying to establish a supply for my return to work as well. My son threw up and quit breathing because it came up his nose and mouth. I watch him like a hawk because he does this with no warning, it’s like a overflow rather then the sound of someone throwing up. The 2nd time it happened I had went into the kitchen to fix dinner and my niece yelled he threw up out his nose.. he stopped breathing again. I flipped him over and patted his back, nothing, repeated 2 times and still nothing, finally 3rd time he started breathing again. My employer allowed me to be off work for 6 weeks for maternity leave. It was a couple of weeks before I was to return to work. I contacted my employer and let them know what was going on and that he is being seen by a specialist. I don’t feel comfortable leaving him with anyone. I was told if I didn’t return on the day agreed prior to maternity leave I would be terminated. Needless to say I no longer have a job. I cannot get unemployment because the state said I quit for personal reasons. My job consisted of phone and emails which could have been done at home, I offered numerous times but they wouldn’t allow it. To top it off, I have a massive lump on my breast, I thought it was blocked duct from breastfeeding, however I found myself sitting in an office after ultrasound speaking to an Oncologist’s nurse telling me that I need to have a biopsy asap. My diagnosis is that is is probably benign but I need to be seen again in a month. My OB/GYN called to tell me and stated that she really thought she was going to be calling me with a diagnoses of beast cancer. Now you understand why the “Super Mom” in training meant so much. I literally am constantly cleaning up puke, my couch is covered with towels to help catch it, can’t go anywhere with out throw up rags, laundry, laundry, laundry, wondering how I am going to pay the bills on the first and praying that the hooter stays benign! With all of this going on, I still feel like everything happens for a reason, and I am just thankful that I am even sitting here holding my son. I am glad to know that someone understands!!

    • heather says:

      Wow Jenn, that is a lot to go through! You definitely have been through super mom training! I’m glad Nutramigen is working for your son, but I’m sure you are feeling it in your pocket book because that stuff is not cheap. I really, really wish that we had better maternity benefits in our country. 6 weeks is not enough time to recover if you have any complications. I’m sorry that you lost your job. Hopefully you can find a better one that is a little more family friendly. I wish you and your baby the best, and long healthy lives. :)

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